Bersuka ria...

Last Saturday was Danish's sports day..oh we had fun...malam tu sebelum tido I dah ingatkan my munchkin..esok Danish lari kuat-kuat tau...jangan pandang orang lain tau...buat cepat-cepat tau...and he answered Ok mama..mama pun lega...besok pagi mama pesan lagi...Danish kena menang tau...tau! dia jawab...
sekali masa his turn it turn out that dia leka menengok orang and how I laughed at him...so cute...tak pe lah danish ....tak menang pun tak pe....usually dalam sports day in his school memang parents yang lebih2...this year we opt out from the parents race sebab my DD tak sihat...
Hopefully he will win next time....
****************************************************
yesterday, Danish went to school, so as usual bila balik kerja he will show me his art work and chop yang dia dapat sebab well done in class....so I ask Danish buat apa kat sekolah...jumpa awek??he answered ...I was stunned!

How do I get to know?

Balik dari ofis semlm singgah klinik nak ambik result blood test yg dibuat..sah tak immune Hep.B so terus la suruh Dr jap for Hep.B...Ptg2 selalu kalau kt klinik ni tak de org so bolehla borak lama dengan Dr...She asked how did I get to know Danish had DS...I memang tak pernah lagi wrote this down...so here it goes...
When I was 7th month pregnant, in my monthly check up my gynae detected that my 'water' is unusually extra..so she said there is 2 circumstances that could happen, first that I ada kencing manis or second something wrong with my baby. so I had to do a test to see whether I'm Diabetic ke tak..kena minum air oren yg tak sedap tu...the result was out and sah I tak de kencing manis...so is there something wrong with my bay..masa tu my gynae tak dapat detect apa-apa lagi so at that point of time we just hope for the best...
My baby was born on 13th March 2001...lepas keluar je Dr terus masukkan D dlm incubator sebab he turned blue...after 3 days Dr still could not detect kenapa he turned blue..there's nothing wrong with his heart...I akan mengulang dia kat Hospital masa time minum and I will try to breast feed him tapi dia jenis tak sabar dan akan mengamuk sakan sebab dia belum pandai breast feed lagi....and dlm 2-3 hari tu lah we realise that kalau Danish minum dalam position yang betul dia akan ok tapi kalau position tekak dia tak betul he will start to turn blue starting from his upper lips naik ke hidung...so dr kata maybe tekak dia premature lagi so we have to be careful when feeding him...make sure he is in the correct position..
Back to the Dr, after 5 hari kat dlm incubator Dr announce that he had to do some blood test to Danish sebab katanya dia detect ada some abnormality pada baby that is:
1. his nipple is too father away from each other
2. langit2 dia tinggi sangat
3. tekak dia yg premature

blood tu dihantar to lab kat LPPKN for chromosome test and at that time the Dr confirm that it is nothing serious..at that time we all dah boleh bawak balik baby and just remember to position him well masa feeding...2 weeks after that the result came out and it was confirmed that Danish had translocation Down Syndrome...masa tu memang la shock..menangis sekuat-kuat hati...tapi we told each other we haveto be strong for him.....bila dah tahu the result, I search in the net for infos...baca buku and finally we met the Genetic counsellor in UH yang bagi guidance in terms of apa yang kena take extra precaution...his medical check up..his skills..his early development program...
he did his heart test in IJN and it turns out that he had no heart problem..(one of the common problem in DS children)..have to do his ear and eye check up every 6 moths in UH..the Drs are wonderful..even I got a dentist for Danish who is also a Kiwanian who is also excellent (he is a specialist for children with disability)..we as a parent have to be proactive..networking group..baca..search internet...sebab hospital memang takde proper guidance on how are we going to cope on the matter...health issues...and etc..
so he is already 4 years old cute as ever..tak macam DS boy pun..whatever describe as features of DS children tak de pun kat Danish except that a bit slow catching up...he's going to start his kindergarten next year..hope for the best..we try to give him the best that could to help him to catch up with the world...Good luck to me...

How do I feel??

Ada email posted to me by a new parent and asked me how do I feel and my previous experience with my eldest...then I remembered a story about Holland and it really shows how I feel when I know that Danish had DS....so here it is...

Welcome to Holland by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

And that is exactly how I feel too....