meandbaby

I will write anything that relates to me being a mother to a Down Syndrome Boy, being a weekend wife,as a daughterand as a human being...

Tuesday, June 14, 2005

How do I get to know?

Balik dari ofis semlm singgah klinik nak ambik result blood test yg dibuat..sah tak immune Hep.B so terus la suruh Dr jap for Hep.B...Ptg2 selalu kalau kt klinik ni tak de org so bolehla borak lama dengan Dr...She asked how did I get to know Danish had DS...I memang tak pernah lagi wrote this down...so here it goes...
When I was 7th month pregnant, in my monthly check up my gynae detected that my 'water' is unusually extra..so she said there is 2 circumstances that could happen, first that I ada kencing manis or second something wrong with my baby. so I had to do a test to see whether I'm Diabetic ke tak..kena minum air oren yg tak sedap tu...the result was out and sah I tak de kencing manis...so is there something wrong with my bay..masa tu my gynae tak dapat detect apa-apa lagi so at that point of time we just hope for the best...
My baby was born on 13th March 2001...lepas keluar je Dr terus masukkan D dlm incubator sebab he turned blue...after 3 days Dr still could not detect kenapa he turned blue..there's nothing wrong with his heart...I akan mengulang dia kat Hospital masa time minum and I will try to breast feed him tapi dia jenis tak sabar dan akan mengamuk sakan sebab dia belum pandai breast feed lagi....and dlm 2-3 hari tu lah we realise that kalau Danish minum dalam position yang betul dia akan ok tapi kalau position tekak dia tak betul he will start to turn blue starting from his upper lips naik ke hidung...so dr kata maybe tekak dia premature lagi so we have to be careful when feeding him...make sure he is in the correct position..
Back to the Dr, after 5 hari kat dlm incubator Dr announce that he had to do some blood test to Danish sebab katanya dia detect ada some abnormality pada baby that is:
1. his nipple is too father away from each other
2. langit2 dia tinggi sangat
3. tekak dia yg premature

blood tu dihantar to lab kat LPPKN for chromosome test and at that time the Dr confirm that it is nothing serious..at that time we all dah boleh bawak balik baby and just remember to position him well masa feeding...2 weeks after that the result came out and it was confirmed that Danish had translocation Down Syndrome...masa tu memang la shock..menangis sekuat-kuat hati...tapi we told each other we haveto be strong for him.....bila dah tahu the result, I search in the net for infos...baca buku and finally we met the Genetic counsellor in UH yang bagi guidance in terms of apa yang kena take extra precaution...his medical check up..his skills..his early development program...
he did his heart test in IJN and it turns out that he had no heart problem..(one of the common problem in DS children)..have to do his ear and eye check up every 6 moths in UH..the Drs are wonderful..even I got a dentist for Danish who is also a Kiwanian who is also excellent (he is a specialist for children with disability)..we as a parent have to be proactive..networking group..baca..search internet...sebab hospital memang takde proper guidance on how are we going to cope on the matter...health issues...and etc..
so he is already 4 years old cute as ever..tak macam DS boy pun..whatever describe as features of DS children tak de pun kat Danish except that a bit slow catching up...he's going to start his kindergarten next year..hope for the best..we try to give him the best that could to help him to catch up with the world...Good luck to me...

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